Resources - ACCOuNT

ACCOuNT is focused on reducing health disparities, in particular among African Americans, through pharmacogenomics research.

The resources below provide additional information for patients and providers on health disparities, pharmacogenomics, and precision medicine. Resources are arranged by topic and target audience. Click each bullet to reveal more information.

General information on health disparities

National Institute on Minority Health and Health Disparities (NIMHD)

ACCOuNT is a Transdisciplinary Collaborative Center (TCC) funded by NIMHD. Learn more about NIMHD here.

Other TCCs that are funded through NIMHD and focus on precision medicine and health disparities are listed below.

- - - Meharry-Vanderbilt Center of Excellence in Precision Medicine: This TCC uses precision medicine research to eradicate health disparities, specifically those among African Americans and Latinos.
    - Stanford Precision Health for Ethnic and Racial Equity (SPHERE) Transdisciplinary Collaborative Center: This TCC focuses on using precision medicine tools to improve the health of underserved ethnic and racial groups.
    - Yale Transdisciplinary Collaborative Center for Health Disparities Research focused on Precision Medicine: This TCC collaborates with the Equity Research and Innovation Center (ERIC) to reduce the burden of non-communicable diseases within New York, New Jersey, and the Caribbean.

National Heart, Lung, and Blood Institute (NHLBI)

NHLBI offers webinars, health education materials, and information on health disparities. Learn more.

NIH Office of Behavioral and Social Sciences Research

Read about social inequities in health and current research aimed at eliminating health disparities. Learn more.

U.S. Office of Minority Health (OHM)

View statistics, provided by the Centers for Disease Control and Prevention (CDC), on heart disease and African Americans. Learn more.

American Heart Association (AHA)

View the AHA’s Fact Sheet on racial disparities and cardiac health.

Nationwide pharmacogenomics research studies

All of Us Study

The All of Us Research Program is a historic effort to gather data from one million or more people living in the United States to accelerate research and improve health. By taking into account individual differences in lifestyle, environment, and biology, researchers will uncover paths toward delivering precision medicine. Enroll here.

My Research Legacy

Sign up to share your health, genetic and lifestyle data, to help researchers in their quest to end heart disease and stroke. My Research Legacy is supported by the American Heart Association.

Million Veteran Program (MVP)

Launched by the Veterans Affairs (VA) Office of Research and Development, MVP aims to better understand how genes affect health and illness in order to improve health care for Veterans. Learn how to participate here.

Find open clinical trials

Find pharmacogenomic clinical trials that are currently enrolling participants. View all.

Implementing pharmacogenomics in practice

FDA: Table of Pharmacogenomic Biomarkers in Drug Labeling

View a listing of FDA-approved drugs with pharmacogenomic information in their labeling.

IGNITE – Implementing Genomics In Practice

IGNITE is an NIH-funded network dedicated to supporting the implementation of genomics in healthcare. Their website offers tools to help clinicians implement genomics in patient care.

PRIME – Pharmacists as Personalized Medicine Experts

The goal of the PRIME study is to develop and evaluate a training program for pharmacists to prepare them to implement pharmacogenomics in their practice. Learn more.

National Human Genome Research Institute

The Genomics Medicine for Health Care Providers website provides reliable, up-to-date genetics and genomics information related to patient management, curricular resources, new National Institutes of Health and NHGRI research activities, and ethical, legal and social issues.

Pharmacogenomics Research Network (PGRN)

The PGRN is a group of researchers whose goal is to catalyze and lead research in precision medicine for the discovery and translation of genomic variation influencing therapeutic and adverse drug effects. Learn more.

Clinical Pharmacogenetics Implementation Consortium

CPIC’s goal is to address this barrier to clinical implementation of pharmacogenetic tests by creating, curating, and posting freely available, peer-reviewed, evidence-based, updatable, and detailed gene/drug clinical practice guidelines. Learn more.

PGRN resources include:

Clinical Pharmacogenetics Implementation Consortium: The CPIC provides guidelines that enable the translation of genetic laboratory test results into actionable prescribing decisions for specific drugs.
PharmGKB: The Pharmacogenomics Knowledgebase: PharmGKB collects, curates, and disseminates information on the impact of human genetic variation.

CDC Genomics and Health Impact Blog

This blog is dedicated to integrating genomics into public health research, policy, and programs in ways that improve the health of all people. It offers comments from a public health perspective on genomic research and programs conducted by CDC and other institutions around the world. Read the blog.

Other resources

The NIH Precision Medicine Initiative (PMI) Cohort Program

Started by President Obama in 2015, PMI is a research effort focused on gathering data from one million or more people living in the United States to accelerate research and improve health through precision medicine. Learn more.

Below are some research programs that are a part of the PMI:

NIH All of Us Research Program: In 2016, the PMI Cohort Program was renamed to the All of Us Research Program, which is getting ready to begin data collection.
The Illinois Precision Medicine Consortium: Helping to lead the PMI in Chicago, the Consortium is comprised of a group of health care provider organizations led by Northwestern University, University of Chicago, University of Illinois at Chicago, Ann & Robert H. Lurie Children’s Hospital and the Alliance of Chicago Community Health Services, LLC.

University of Chicago Center for Personalized Therapeutics

This center supports research studying the relationships between genetic variation, disease and drug metabolism, and the emerging field of personalized medicine. Learn more.

U-PGx: Ubiquitous Pharmacogenomics

The U-PGx consortium is addressing major challenges and obstacles for implementation of PGx testing in patient care, taking into account the diversity of healthcare systems and citizens across Europe. Learn more.

American Heart Association Institute for Precision Cardiovascular Medicine

The AHA is dedicated to advancing precision medicine in cardiovascular care. Learn more.

PHG Foundation

The PHG Foundation is a think-tank based in England and Whales that offers educational resources such as lectures, presentations, and interactive tutorials on genomics.

Learn Genetics: Genetic Science Learning Center

Sponsored by the University of Utah, this resource provides interactive presentations, videos, and articles about precision medicine. Learn more.

Background information on human genetics and pharmacogenomics from NIH

Check out the resources below for more background information from NIH about human genetics, precision medicine, and pharmacogenomics.

Genetics Home Reference: This reference guide offers an introduction to fundamental topics related to human genetics.
National Human Genome Research Institute: This NIH resource answers frequently asked questions about pharmacogenomics.

Disclaimer: The ACCOuNT website provides links to other internet sites for informational purposes and the convenience of its users. The ACCOuNT team does not endorse or recommend any specific organizations, resources, or products.